Category Archives: Disability

Longer school hours – did anyone think about the #SEN child?

You’ve probably heard about the government proposal to extend school hours to 45 hours of education per week.  Apparently it is designed to allow ALL parents to work full time without resorting to additional childcare.  You can read more about it here. My view is … Continue reading

Posted in Disability, Family Life, Parenting, School, Society, Special Educational Needs, Work | 3 Comments

What sort of life will my boy have if he is dumped on benefits at the age of 16?

I have kept this post back for a while as it is a depressing read.  Nevertheless with the news today that more than 75% of our unemployed young people do not feel  they have anything worth living for, I think it’s  … Continue reading

Posted in Autism Spectrum Disorder, Disability, Mental Health, Post 16 | Tagged , , , | 2 Comments

The Marketisation of #SEN

SENDirect is a project being developed by the SEND Consortium which is made up of several national charities: Ambitious about Autism, Contact a Family, Dyslexia-Action, Mencap, Scope, ICAN, KIDS and the National Autistic Society. SENDirect will be a National Online Brokerage Service … Continue reading

Posted in Care, Disability, Special Educational Needs | Tagged , , | 2 Comments

Contempt

I wrote to the LA complaining about the way my daughter’s tuition had been abruptly ended.  I argued that it was unfair that no thought had been given to her disability and the need for transition.  A few days later I received a response saying … Continue reading

Posted in Aspergers, Disability, Girls with aspergers, Mental Health, School, School Refusal, Special Educational Needs, Statement | Tagged , , , , , , | 2 Comments

Mumsnet’s #thisismychild campaign – my thoughts

Mumsnet are running a campaign called #thisismychild which aims to bust damaging misconceptions of children with additional needs and to promote support and understanding for families. All too often children and young people with disabilities are stared at, ridiculed and … Continue reading

Posted in Aspergers, Autism Awareness, Autism Spectrum Disorder, Campaigns, Disability, Parenting | Tagged , , , , , | 6 Comments

Stay at home motherhood is NOT a lifestyle choice for some

I know the childcare scheme has been discussed a lot recently but I am so fed up with the misrepresentation of stay at home parents that I thought I’d document my views here.  As you probably know it is proposed that families with working … Continue reading

Posted in Care, Disability, Motherhood, Parenting, Society, Work | Tagged , , , , , | 1 Comment

From grief to acceptance

I read an autism article the other day.  It was in one of our national newspapers and attracted a lot of heated discussion.  One thread that caught my attention was a series of exchanges between people about the impact of learning … Continue reading

Posted in Aspergers, Autism Spectrum Disorder, Disability, Parenting | Tagged , , , | 4 Comments

If I was to speak to Edward Timpson MP I would say

….that just reforming the statementing system is not enough to relieve the hardship that families like mine face.  We also need local services and local schools that are equipped to support the needs of our children.  As my story will illustrate, … Continue reading

Posted in Aspergers, Autism Spectrum Disorder, Campaigns, Disability, Girls with aspergers, School, School Refusal, Special Educational Needs | Tagged , , , , , , | 2 Comments

Share your story and help campaign on the Children and Families Bill!

I’ve just received this email from the EDCM (Every Disabled Child Matters) and I thought I’d share it with you. Dear Debbie The Children and Families Bill currently in Parliament will change how children and young people with special educational needs (SEN) … Continue reading

Posted in Campaigns, Disability, Special Educational Needs | Tagged , , | Leave a comment

Being a parent-carer and why I think more recognition is needed

As a parent I sometimes find it difficult admitting that I am also a carer.  It feels an uncomfortable fit mainly because I don’t feel I meet the stereotypical image of someone who looks after a spouse or elderly parent.  To refer … Continue reading

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Posted in Aspergers, Autism Spectrum Disorder, Care, Disability, Parenting | Tagged , , , , | 2 Comments