I’ve just received this email from the EDCM (Every Disabled Child Matters) and I thought I’d share it with you.
The Children and Families Bill currently in Parliament will change how children and young people with special educational needs (SEN) and disabilities are supported in England. EDCM is campaigning to strengthen the Bill to ensure that it meets the needs of ALL disabled children.
We need you to help us tell the story of children and young people with SEN and disabilities who will challenge the new system or have traditionally struggled to get the support they need within the current system.
We would like you to share with us your experiences of struggling to access health and social care support for a child with a disability or health condition, or for yourself if you are a disabled young person.
What do we want you to tell us about?
We want you to tell us about the difficulties you have experienced accessing health and social care support if you are:
- A parent of a child identified as disabled between birth and 3 who struggled to get the support they needed
- A parent of a child who needs health and social care support but doesn’t have a statement of SEN
- A parent of a child who has a statement of SEN and has struggled to get the health and social care aspects delivered
- A young person over 18 who is not in full time education, employment or training but has health and social care needs
How will we use the stories you give us?
EDCM will produce a briefing using the information you give us about your experiences. We will use this to help explain to MPs and Peers why we are calling for change to the Children and Families Bill and how it should be improved. It is vital that MPs and Peers understand the impact the Bill will have on people’s real lives.
Thanks for your support